§ 6264. Purpose and duties
Purdon's Pennsylvania Statutes and Consolidated StatutesTitle 35 P.S. Health and SafetyEffective: July 7, 2017
Effective: July 7, 2017
35 P.S. § 6264
§ 6264. Purpose and duties
(3) Coordinate the performance of the advisory council's duties with those of other rare disease advisory bodies and community-based organizations and other public and private organizations within this Commonwealth for the purpose of ensuring greater cooperation between the entities within this Commonwealth and Federal agencies regarding the research, diagnosis and treatment of rare diseases. For purposes of this paragraph, Federal agencies may include, but are not limited to, the National Institutes of Health and the Food and Drug Administration. The coordination shall require, when appropriate:
(1) Research and determine the most appropriate method to collect rare disease data, and information concerning individuals with rare diseases, as the advisory council deems necessary and appropriate to conduct comprehensive surveys of rare diseases diagnosed in this Commonwealth, subject to all applicable privacy laws and protections.
(6) Coordinate the development of a task force, comprised of members of the advisory council and other individuals as may be necessary and appropriate to facilitate the development and publication of the report specified in section 6(b).1
Credits
2017, July 7, P.L. 285, No. 14, § 4, imd. effective.
Footnotes
35 P.S. § 6266.
35 P.S. § 6264, PA ST 35 P.S. § 6264
Current through 2023 Regular Session Act 1. Some statute sections may be more current, see credits for details.
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